Congenital Heart Defect Awareness




6 Facts About Congenital Heart Disease (CHD)

  1. Most Common Type Of Birth Defect
  2. 1 Out Of 100 Infants Impacted
  3. 25% Of CHDs Require Surgery Or A Procedure Within A Baby's First Year Of Life
  4. More Than 90% Of Children With CHD Live Into Adulthood
  5. 3 Million+ Children And Adults Are Living With Congenital Heart Disease
  6. Common CHDs Include:
  • Bicuspid aortic valve
  • Ventricular septal defects
  • Atrial septal defects

Did You Know? Terminator actor Arnold Schwarzenegger has Congenital Heart Disease? This shows that despite CHD, people can still live a normal life. They just need lifelong follow-up!

So if you have CHD or know someone who has Adult CHD & needs follow-up, please refer to University Hospitals Sussex

  • Adult CHD Consultants: Dr Victoria Parish and Dr Joanna Luszczak
  • Adult CHD Nurse Specialists: Martina Semeraro and Charmaine Cuenca

Direct Helpline: 07557 824209 (Mon-Fri 9am-5pm)


Somerville Heart Foundation

Somerville Heart Foundation is the only UK-wide charity dedicated to supporting young people & adults with CHD.
Over an average year, they provide:

  • 500+ hrs of mental health & wellbeing support
  • peer support to 1500+ ACHD members
  • support through 1000 Helpline and web enquiries
  • CoaguChek machine

Published: Feb 27, 2023